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UNSICHTBAR

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Hi, to all those involved for ME / CFS or even affected.

I am sending you below a call, asking for support. Esther Beutz is a photographer, which the
on fatigue, but in cancer, has taken up and has organized a traveling exhibition about it.
We are in contact with Ms. Beutz, hoping to win it and for a project to ME / CFS.

If it is possible to 31.10. 2010 total of 100 fan-to's for your project win, they get financial support. The
Register as a fan is for you / you free of charge and is not associated with willingness to donate.
It's all about the register as a fan I would
very happy if you / you mithelft the figure of 100 fan's reach.
Registration as a fan is also possible with a nickname.

Greetings
Nicole Krueger
network CFS &
Lost Voices Foundation
wholesale Buchholzer Str 36B
30655 Hannover Tel

0511/2706751 E-mail info@lost-voices-stiftung.org "

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Dear friends, lovers and photo art lovers,

today I am writing with an unusual idea to you.
for the extension of my photo-project "invisible" on the cancer-related fatigue, I need your support. I have with the project at Crowd Funding Platform Start Next "registered and to recruit sponsors, mainly for the printing costs of the other posters of" invisible ". Here I present "invisible" also detailed.

Some of you already know so well the first 10 posters, which began on the occasion of the exhibition "deadly sins" of the Hannover Kunstverein: kunst.diskurs and cinnabar-art race people were seen in the last year. Now, the project will continue to grow!
When I get to 31/10. So to Sunday, 100 fans get together, I first funding. A - free for you - help would be to start next to log in and "fan" to be my project. This is also a nickname. Just the "Fan will "click button under the photo: http://www.startnext.de/unsichtbar
also free, it is possible to make my project on your Twitter or Facebook page can click known given the appropriate button under the photo and. follow the instructions. It even has widgets, if you wish for "invisible" on your homepage.

can also support me financially, by logging in to start next and eWallet for Fidor open bank (which is . not a bank account) The first 500 applicants at the bank Fidor way to get 15, - € given that you can invest in my project , more Applicants will receive 5, - €. Why is the opening of a eWallets is necessary for that purpose and how it works is explained in the blog and the FAQ on the site of next start. Just contact the team at Start Next, there is one very helpful and is working on a simplification: If difficulties arise in the application.
to sponsorship you will of course thank you from me, you can choose to look at my project page: http://www.startnext.de/unsichtbar Even small amounts, for example, 1 Euro, are very welcome. The idea of Crowdfunding is that many people can make even small amounts of a project.
On the project page, Twitter and Facebook I think you posted.

Schonmal a very sincere thanks!
Sincerely
Esther Beutz
---------------
Imprint
Esther Beutz
Association Strasse 19 30175 Hannover

www.xing.com / profile / Esther_Beutz
www. twitter.com / estherbeutz
www.facebook.de / estherbeutz "

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What about Me ?

What About Me Trailer - USA from Double D Productions on Vimeo .

text as pdf

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What About Me? Trailer - UK from Double D Productions on Vimeo .

text as pdf

Financial Management - By Pandey

Häufig gestellte Fragen zum Chronischen Erschöpfungssyndrom (CFS)

1. What is chronic fatigue syndrome?

2. What are the main symptoms of CFS?

3. What are the causes of CFS? How it goes off?

4. How long is CFS?

5. Will I be back healthy?

6. Is there a treatment for CFS?

7. Can you die from CFS?

8. How do I find a doctor who is familiar with CFS?

9. How is CFS diagnosed?

10. CFS is an appropriate name for this disease?

11. Is CFS contagious or hereditary?

12. Who gets CFS?

13. How many sick people are there in Germany?

14. CFS is a new disease?

15. How do I explain CFS my friends, my family and my employer?

16. stress plays a role?

17. Can I have a job with CFS?

18. Why CFS is so little known in Germany?

19. Why was ignored CFS by doctors for so long and misunderstood?

20. What other diseases are there that have similar symptoms?

21. CFS is a depression or a psychiatric disorder?

22. What can I do, so I feel better?

23. More information

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Rente durch (PRIVAT)

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So now it is faster than expected by

My wife, your pension by

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Letter to U.S. Secretary of Health from P.A.N.D.O.R.A.

I am not supporting the last of the Major Projects and so now a project of "Marly C. Silverman , the founder of PANDORA"

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Targeting: Mrs. Kathleen Sebelius (U.S. Secretary of Health & Human Services)

Started by : PATIENT ALLIANCE FOR NEUROENDOCRINEIMMU DISORDERS ORG Resech & ADV

IMPORTANT NOTE : MAKE SURE YOU COMPLETE YOUR PROFILE ON YOUR VOICE IS TO ENSURE CHANGE.ORG HEARD AND YOUR NAME WILL BE DISPLAYED ON OUR SIGNATURE LIST.

CALL TO ACTION
It is estimated that 20 MILLION AMERICANS are stricken by NeuroEndocrineImmune Disorders such as chronic fatigue syndrome (CFS)-myalgic encephalomyelitis or encephalopathy (ME), fibromyalgia (FM), Gulf War syndrome/illness (GWS-I), multiple chemical sensitivity (MCS) and chronic Lyme disease (CLD).

The U.S. Secretary of Health and Human Services, Kathleen Sebelius states on her web page that "Our goals for all Americans is to live healthier, more prosperous, and more productive lives." This is the same goal of P.A.N.D.O.R.A. for individuals stricken with NeuroEndocrineImmune Disorders, and yet for the past 7 years all of the recommendations o the Chronic Fatigue Syndrome Advisory Committee has made to past and current U.S. Secretaries of Health have not been executed. Not a single ONE recommendation has been put in place. Why not?

Click here for our latest Press Release Call to Action on this subject, dated August 25, 2010 - http://www.pr.com/press-release/258171

SISTER PETITION ON FACEBOOK

This is the sister petition for the petition already posted on the NeuroEndocrineImmune (NEI) Center(tm) Cause-Project, on "Causes" on Facebook. The NEI Center(tm) is a project of P.A.N.D.O.R.A. - Patient Alliance For NeuroEndocrineImmune Disorders Organization for Research and Advocacy, Inc. in partnership with the Lanford Foundation-Lifelyme (tm), Inc and other patient groups.

As of September 27, 2010, the Facebook sister petition is 1,671 signatures strong.  We have been asked by many of our supporters to bring a sister petition to another site. Here we are! This petition is for individuals who want to support our petition on Facebook , but  don't wish to be a user of Facebook. If you already signed on the Facebook petition, you ask you not to sign on this one. We appreciate your support.

REASONS TO SUPPORT AND SIGN THE PETITION

When you sign this petition you are supporting P.A.N.D.O.R.A. and its collaborative partners in getting a response from the Office of the Secretary of Health for a meeting with the U.S. Secretary of Health & Human Services, Mrs. Kathleen Sebelius to ensure her support for aggressive and substantial funding for the NEI Center(TM) and other similar facilities throughout the U.S. Please sign this petition today and forward to your friends and family. We can no longer ignore the physical, financial and emotional toll that these illnesses take on the fabric of communities across the U.S.

Patient with NEIDs deserve the same quality of life and investment dollars in scientific research and patient medical care, that their neighbors and other individuals with other illnesses are currently experiencing and receiving. The time for change is NOW. Sign off on this petition and make sure you get at least 5 people to sign off too.Thank you for participating in this amazing grass roots effort. We need your support now more than ever!

In Good Health and In Beauty,
Marly C. Silverman,
Founder, P.A.N.D.O.R.A. - Patient Alliance For NeuroEndocrineImmune Disorders Organization for Research and Advocacy, Inc.

PETITION TEXT

Join in asking U.S. Secretary of Health to meet with P.A.N.D.O.R.A. & provide funding for the NEI Ce

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Dear Secretary Sebelius,

In 2009, we requested a face-to-face meeting with your or with a senior staff to address the lack of substantial funding for NeuroEndocrineImmune disorders (NEIDs). We also asked you to direct the National Institute of Health (NIH) & the Center for Disease Control and Prevention (CDC) to provide short & long-term research funding for CFS-ME, fibromyalgia, Gulf War syndrome, multiple chemical sensitivity & chronic Lyme disease. Your office has unfortunately ignored our request for a face-to-face meeting and so far no response on the funding for chronic fatigue syndrome and related neuroendocrineimmune disorders has been forwarded to our organization.
Therefore we respectfully ask you to meet with P.A.N.D.O.R.A.'s representatives and with our partners representing our major stakeholders- millions of Americans ,who for far too long have endured a lack of quality of life due to chronic fatigue syndrome, also known as myalgic encephalomyelitiis, often due also to the overlapping with other related chronic NeuroEndocrineImmune Disorders (NEIDs).
We ask for aggressive allocation of resources for NEIDs. We also ask that you ensure substantial funding is allocated to projects like the NeuroEndocrineImmune (NEI) Center(TM) and other similar facilities in the U.S It is also crucial that funding for physician training is provided through AHEC and other health agencies in partnership with community and patient advocacy organizations like P.A.N.D.O.R.A. and the NEI Center(TM). It is of utmost importance to ensure medical schools in the U.S. will partner with community and patient advocacy organizations on the task of educating their medical student, their academic professionals, and their current teaching medical faculty, as well as collaborating in much needed scientific research. No longer medical school staff can maintain such a bias against education for medical students and future researchers in the scientific field of NeuroEndocrineImmune Disorders.
Thank you for your attention to this matter.
In Good Health and In Beauty,
Marly C. Silverman,
Founder, P.A.N.D.O.R.A.- Patient Alliance For NeuroEndocrineImmune Disorders Organization for Research and Advocacy, Inc.
1Voice, 1Community, 1Cause!(TM)

[Your name]

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Prävention, Diagnose und Therapie - VIBROcure

 

Dr. Christof Ziaja hat auf dem Gebiet der Prävention sowie der Diagnose und Therapie von CFS-Erkrankungen einen neuen Ansatz entwickelt. Mehr Informationen zur VIBROcure therapy can be found HERE !

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new idea or just another batch without hand and foot?

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Eure Meinung ist gefragt

Hello dear readers.

I was wondering your opinion on the following contribution (about 40 minutes)

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RTLNOW.de - Punkt 12 Kompakt - Folge: CFS

Here is the link to a very good video of two individuals about CFS

RTLNOW.de - Compact Item 12 - Impact: Item 12 Reporter

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3 billion (!) In phasing of 21st ST

people, it comes as always: do
cash in for anything, and criminalized the opponents of extravagance shall be guilty!
This is typical in our society aggression against the unemployed, low-income single parents in particular deal with all the weak and defenseless, against nature.

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Entwarnung: XMRV nicht humanpathogen

Boston / Oxford / Houston - The murine leukemia virus Xenotropic (XMRV), which causes leukemia and lymphoma in mice is probably harmless to humans, such a number of studies in the Journal of Infectious Diseases (online version) shows.
XMRV discovered in 2002, made headlines in recent months, the headlines. Several research groups have demonstrated viral genes in patients with prostate cancer, chronic fatigue syndrome and transplant recipients under immunosuppression.

This was not least because XMRV belongs to the retrovirus, caused some concern. In July, even an expert meeting dealt with the FDA the possibility that XMRV spread through blood products could.

But the findings of the investigations should now calm things down. The group Athe Tsibris of the Massachusetts General Hospital in Boston has been demonstrated in any of 239 patients with immunological disorders (chronic fatigue syndrome, rheumatoid arthritis), immunosuppressed (transplant patients, HIV-infected) or general patient virus traces, and the question is, why the tests at other researchers for up to two thirds of the patients were positive.

The group led by John Frater from the University of Oxford, has screened 230 HIV or hepatitis C-infected individuals, and no virus detected in traces. The absence in these two groups at high risk of transmission through sexual or blood contact contradicts earlier studies that had warned of an incipient pandemic.

Only the group led by Jason Kimata from Baylor College of Medicine in Houston, Texas, found one. The virologist had examined tissue samples from 144 patients with prostate cancer and detected in 32 (22 percent) XMRV. But this does not mean that the virus is involved in any way in the pathogenesis, especially since it was also present in normal tissue.

Frank Maldarelli and Mary Kearney request from the National Cancer Institute in Bethesda Although further studies. They should, however, more critical than ever concerned with the detection method or a possible contamination in the laboratory. © heat / aerzteblatt.de

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Schweregradscala CFS nach David S. Bell

of the familiar;; 50-70% of the familiar;;

points	seriousness of the complaint
100	No complaints, normal activities, work stress and problem-free .
90	In light pollution complaints, normal activities, work stress and problem free.
80	At rest, mild pain, worse under load, minimal restrictions on the activities under load; demanding full-time work with problems.
70	At rest, mild pain, worse under load, activity is close to 90% of the familiar and easily identifiable restriction of some daily activities, full-time work with problems.
60	At rest, mild to moderate symptoms worsen under stress, activity is not 70-90% of the familiar and easily identifiable limit daily activity, not in a position all day with physical work use, but capable of a light full-time employment pursue during flexible working . reduced activity to 70%
	50 moderate symptoms at rest, on exertion moderate to severe inability to cope with more demanding tasks, capable of lighter duties 4-5 hours day run, rest breaks are required. reduced activity on
	40 moderate symptoms at rest, at moderate to serious efforts not on the House limits; unable to perform strenuous tasks, able to perform lighter duties 3-4 hours a day, rest breaks are required.
30	At rest, moderate to severe symptoms, severe symptoms in all efforts; activity 50% reduced the familiar, mainly confined to the house, unable to take any strenuous duties; capable perform light work 2-3 hours a day, rest breaks are required.
20	At rest moderate to severe symptoms, severe symptoms in all efforts; activity reduced 30-50% of the familiar, and only rarely able to leave the house, unable, for most of the day in bed to perform strenuous activities.
10	At rest and in all efforts severe symptoms, cognitive symptoms preventing concentration, no leaving the house, most of the time bedridden.
0	in peace efforts and continuous severe symptoms, constant bed-ridden; unable to care for themselves.

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Own Comment:

My wife has a score index 20-30

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Anträge & CO (1): Severe disability

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own comment:

My wife successfully completed a degree of handicap of 50% requested

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is severely handicapped severe disability

, was where a disability of at least 50% degree (degree of disability), respectively. The Schwerbinderung is determined by the security office.

Why make an application / For what is a good application

There are several reasons to request a focus on disability. For some it is about protection from dismissal of the job because he no longer fully operational, or is about the use of early retirement pension. It also depends very much on the type of disability, the benefits you get through it.

In many cases, CFS will go to the dismissal, as disabled have special protection against dismissal. Some look to be any benefits in a pension procedures. Let

you the best advice by the pension office, the main welfare office or other institutions!

request for an application form to establish a severe disability is sent with the appropriate security office of your residence or possibly also in the town hall, if there is a counseling center for "matters of disabled people" incorporated. The application can also request in writing or by telephone at the appropriate office. The address of the pension office can They find themselves very quickly at the link www.telefonbuch.de .

filling out the application

The application is pretty simple design so only a few additional words on the points' reported health problems and information on the use of handicaps and exhibitions a pass

Important Should not the place rich in the application form for your records, please attach a separate sheet. Do not hesitate to attach a separate sheet, just as with CFS experience a lot of symptoms that do not fit in this space before seen in the application form.

health data disorder

here any symptoms they have. Remember no symptom. To help you to print out a list of symptoms. The symptom list, you can now go and enter your symptoms and the degree of severity. The list should be seen only as an aid to forget no symptom. Take notes on the severity of symptoms and the frequency of occurrence. Write down all the symptoms in the application. Create reports that are in your possession a copy at.

The Pension Office will request from your treating doctors, hospitals and other places your reports of findings. Are the documents not from an assessment, you will be asked for additional investigation.

Think of the extra paper if the space on the form is not enough!

certificate / Data character

After your successful application to get a permit for the handicapped. On the document the degree of disability and may wish characters is entered. The marker shows the claim to the particular disadvantage offsets the You can get separately.

wish sign

G - major walking disability

aG - exceptional mobility problems

BI - blindness

B - Monitoring

H - helplessness

RF - exemption from the license fee obligation

VB - Supply Authorized

EB - compensation under the Federal Compensation Law

use of handicaps

There are several disadvantage offsets are ever to get the degree of disability and the given bookmark. Registered

I have listed here.

• gratuitously transport by public passenger transport
• remote
• dismissal
• performance at work / additional leave
• tax package
• broadcasting - television and fee exemption
• Telfongebührenreduzierung
• etc.

In the booklet guide for disabled people - Tips you can learn more about it. Available from the responsible security office

investigation

If you are invited to an examination appointment do not be alarmed. This is an investigation to determine the degree of your illness and keep your limitations. Go

loose for investigation. They point to bring all of your opinions and findings of the investigation is on in this conversation. Especially reports and findings that you have not yet set in front of the security office. Do not forget a list of medications you are currently taking.

There are not visible and not medically detectable in many CFS symptoms and complaints put yourself into a long conversation with the doctor. He will ask you according to your complaints. Respond to the questions in great detail. Duration, severity and frequency of complaints, you should tell the doctor. Do not forget your complaints.

The physical examination is very short.

please do not notice if the investigation is to be strenuous to ask a follow-up appointment.

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Own comment:

Thanks to the many medical findings had my wife to no further medical examination

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Tips

Include a separate sheet and describe where your difficulties, symptoms and limitations. Refer to the CFS criteria that you have attached mention, and which must be present for the diagnosis of CFS is a limitation of 50%. Mention was also confirmed by which doctors diagnose CFS and add at least one report / certificate with the diagnosis.

These tips can also be used in a re-evaluation.

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CFS / ME in the 21st Century

conference

of Fatigatio eV

CFS / ME in the 21st Century
search for pioneering diagnostic and treatment options
25.-26. September 2010 in Dortmund

The conference brochure can be found both the conference program with a list of all lectures and workshops, a brief presentation of the speakers and their activities and an introduction to their respective issue / her presentation.

Own Comment:

It is "only" a conference brochure but I still think some interesting things in it are

Those who want can also DVD the conference for 45 € order

Source: CFS Aktuell.de

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Chronic Fatigue Syndrome is the topic in the pharmacy-Umschau October 2010

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In a very well researched and detailed article, the pharmacy Umschau covered in this month, the Chronic fatigue syndrome. It is presented the case of a person concerned, two doctors (Dr. Ch Von Keudell, Munich, and Prof. Carmen Scheibenbogen, Berlin) gave the interviews. The Apothekenumschau in almost every German pharmacy free of charge and has a very high circulation. We hope that this publication's knowledge and awareness in the population and physicians to the disease increased. (pharmacy-Umschau, 1 October 2010, pages 46 - 49)

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barbed wire against citizens - is now Germany Guantanamo!

In Stuttgart now the opponents of the Prestige project Stuttgart 21 are locked up with barbed wire.
is true it is 'just' a piece of the Stuttgart Palace garden, the king was once the people passed, but others, which one would never despotism seriously can say of having a part of this garden is now fenced with barbed wire - the question is So only if you now in the cage or outside the cage feels what is a philosophical question, because you can say just as well that you will be held from freedom via barbed wire to get away (or go there) to move.
Within the barbed wire cage - As I said, to see purely philosophical - the people have set up but like millions of Hartz IV recipients.
There are cakes, music, talk (thanks to opposite side), nice like-minded people, even a certain man of extraordinary finds from Heidelberg without problems people can talk to him, or will be addressed (from attractive women).
good when something like getting paid by Heidelberg is, purely and officially, because something more important to some people, such as work or study - but only in passing ...
get thrown back to be pointed out d ate the Cutting of trees occurred natürlicch completely illegal, because several bugs not previously relocated, and criminal charges were dewegen. Rest now expected to 8th October for the first time.
children, you are in Heidelberg trauma injected meanwhile warned to go for the brutal aggression to the police, because the fact the statements in their own interest want to defuse any such - great law.
Interesting but nice parallel, is that Robin Wood many similarities in terms of strength and decency with a Heidelberg phenomenon ( Robin Hood of Mount ), the look here and there can be, and one or the other statement, but really nice unofficial and largely behind the scenes - only rarely does that (nachsagt the one that he had exceptional Forces) into the spotlight.
any case, they went, of course back first class (because the other compartments were full), which is for a change, maybe a kind of self-disclosure (one wants to be one-sided), which was really good, as it has since more space for sitting, and can be dressed up with the police in civil funny chat nice. But even in gear is something cultured, we have known it in the rough cross, and therefore can not always stop at the front line with, but must be content to draw from far back to the threads with.
What was lacking until now, of course, the torture aspect that has so far given that Germany as a result of economic Straw fire on credit to fall even more deeply is because it will take as an export nation the mega damage less easily as those whose spirits leader has recently called for agricultural commitment, and therefore have meaningful employment, and hunger especially in less need like the poor, by all sides are raped and harassed - by giving them the ladies screws always endeavors to cut off coarser (less begrudge democratic rights) and then also look to have those forces, how valuable is being destroyed piece, whether tree, child, or future.
Heidelberg finds something funny on record ...

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second fatality in the destructive war against the poor and weak

second fatality in the destructive war against poor and weak in Stuttgart (against Stuttgart 21):
"The dead woman was pushed by the police that they stürzte.Dabei to the ground, she suffered a heart attack and died. An eyewitness has me as Versammlngsleiter Sun mitgeteilt.Es were other dates a woman, welc ... he was taken from the water jet directly on the breast and should be dead. "
source FB
the brutality of those at small and unarmed assault is enormous.
also heidelberg out war against marginal groups and individuals, they Sickte in the mental hospital, she explains arbitrarily for the mentally ill and wonder if it looks different but then ...
am the way I am one of the few doing about what, countless were murderers of cruel driven death back in the - but interested so no ...

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survey ordered by the end of October 2010 portrait

What can I change on this page or what you'd like?



I'm naturally interested in what you see and what you like to read /

want to why this small sample


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result

More Videos 0 votes (0.00%)
More text articles 0 votes (0.00%)
More links to other interesting pages 0 votes (0.00%)
added their own comments / opinions 1 vote (33.33%)
Other 1 vote (33.33%)
nothing. Keep it 1 vote (33.33%)
Total: 3 votes (100%)

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The fact that children are nothing the Heidelberg trauma Office so the other day again only to prove made. That older women are sometimes killed shortly is now known, but is kept under lock and key - after all, a way to keep pension payments stable, easy to bump off poor.
But unemployed be well known, tortured in many different ways - live your own fault if you stay, you can even commit suicide, as it is always too poor little suggests. The fact that the protest has lost
addition noh someone his eyesight not interested anyway because the tunnel it is dark anyway, and one's opponents even to green behavior front raises, so stay for that then the underground train station in future dark.
I myself was indeed on Friday on the spot, great atmosphere of the professional protesters (as some call), peaceful and above all - which could have one or the other been annoyed by something, after all, is fair, and football have been announced - and nothing happened to criminalize the enemy of ST 21!
Either way, you have a breeding
offender for the new 68-er down - be proud!
The biggest demonstration in Stuttgart - I was there!

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